GUEST SPEAKER : CHRIS CURTIS
The Topic was WEBSITE DESIGN and HOSTING. 13-SEPT-2012.
We offer a very comprehensive website design and maintenance service, don’t be scared to have a website, it can be as easy as 1,2,3 and with our in-house design team it could not be any easier for your group to get that website you can be proud to tell people about.
For more information call Chris on 07779 169 833 or email email@example.com
Sample websites: -
Hosting costs from £10 per month including your own group’s email accounts i.e. firstname.lastname@example.org
Design, build and maintenance from £60, to get your personal quote call Chris on 07779 169 833 or email email@example.com.
The swallows website was used as an example :
Whether you are a small business or a large corporate, our web design company can help you to achieve an online presence that delivers the very best for you and your clients. If your goal is to provide information, products, etc. on a website we can ensure that the visitors enjoy an informative, user-friendly and interactive experience.
THE FULL SERVICE
We offer a comprehensive service from the basics like domain registration and hosting to the design of logos, sourcing of photographic images, layout, programming and deployment and unlike many of our competitors everything is handled in-house.
PEACE OF MIND
For your peace of mind all web sites are made available to view online during our production process allowing clients to view progress and to give us feedback reports. This is a similar process to producing proofs of traditional printed information.
The website was developed by Chris Curtis, Cancer Survivor 2012 because on his journey he found that many patients had nowhere to go to talk to likeminded people, and when searching the internet there was not one website that could guide him to a self-help support group in his area.
He set a task to develop a site that highlighted every Cancer self-help support group in the UK and make it very easy for the viewer to find his or her support group in any given area of the country.
It seems everyone in our support group would like me to express appreciation for your presentation at the S.L.O.P. Cancer Support Group Monthly Meeting on the 13th SEP 2012. Your years of research, your depth of understanding of user interfaces, and your ability to present the subject in such an interesting and understandable way helped take some of the mystery out of website design. We personally appreciated your approach to anticipating users' intents, and as the subject OF WEBSITE DESIGN intrigued us, you will always be welcome at our meetings and we look forward to your assistance to develop a S.L.O.P.CANCER SUPPORT GROUP WEBSITE.
Guest Speaker : Elaine Stephenson RGN.
The Topic was the Progress and Effect of Food on our Body. 8-Nov-2012.
Elaine Stephenson RGN, a fully qualified nurse, worked at the Royal Lancaster Infirmary for over 20 years, and practices Reiki healing , has studied Kundalini Yoga and is a colon hydrotherapist, also runs the Whitelands Clinic for Colonic Health and Inner Well-Being in Morecambe.
Today her subject for discussion was the ‘Progress of food along the Alimentary Canal’ and the comparison of this process, before and after, surgery, for oesophageal cancer.
The tube through which food passes extends from the mouth to the anus and forms a large part of the digestive system. In human adults, it is about 9 m/30 ft long, consisting of the mouth cavity, pharynx, oesophagus, stomach, and the small and large intestines. It is also known as the gut. It is a complex organ, specifically adapted for digestion and the absorption of food. Enzymes from the wall of the canal and from other associated organs, such as the pancreas, speed up the digestive process
The muscles in the wall of the alimentary canal contract, mixing food with the enzymes and slowly pushing it along in the direction of the anus in a process known as peristalsis. Dietary fibre encourages this movement. The constant stream of enzymes from the canal wall and from the pancreas assists the breakdown of food molecules into smaller, soluble nutrient molecules, which are absorbed through the canal wall into the bloodstream and carried to individual cells. The wall of the canal receives an excellent supply of blood and is folded so as to increase its surface area. These two adaptations ensure efficient absorption of nutrient molecules.
It seems everyone in our group would like me to express appreciation for your inspiring presentation at the S.L.O.P. Cancer Support Group Monthly Meeting on the 08th Nov 2012. Your years of research, your depth of understanding of user interfaces, and your ability to present the subject in such an interesting way produced one of the most memorable sessions in our group's history. We personally appreciated your approach to anticipating users' intents, and as the subject intrigued us, you will always be welcome at our meetings.
Elaine is available to give presentations on Colonic Health and Inner Well Being to any groups or organizations who are interested in healthier living . Tel. No. 01524427020, www.whitelandschc.co.uk
Email : firstname.lastname@example.org
WHITELANDS CLINIC, 197, HEYSHAM ROAD, MORECAMBE, LA3 1DF
Guest Speaker - Tania Sharkey
SAMSARA - HOLISTIC THERAPIES and REFLEXOLOGY DEMONSTRATION 14-FEB-2013.
Tania Sharkey attended the S.L.O.P. Monthly meeting on 14th Feb2013, to provide an insight into Holistic Therapy and Reflexology, then proceeded to demonstrated this to various members of the Group, who volunteered for treatment.
Massage is a systematic, therapeutic stroking and kneading of the soft tissues of the body, which has been used as a form of therapy for thousands of years. Earliest records of the use of massage as a therapy come from China over 5,000 years ago.
There are many different types of massage that have been developed; some approaches focus on the physical effects that the massage techniques have on the body, whilst others focus attention on the relationship between the exterior and interior of the body which is also closely interlinked via the nervous system. All types of massage have an effect on the skin, muscles, blood vessels, lymph, nerves and some of the internal organs, together the flow of 'energy' within the body.
Please contact Tania , for appointments or further information. Tel : 01254852863 / 07771932049.
Tania also donated a GIFT Certificate for £10, which will be raffled, for the S.L.O.P. group member’s during the next meeting in March. 2013.
Guest Speaker - Clare Tibke.
The Topic was NHS CLINICAL TRIALS 12-JUN-2014.
The Group would like to welcome and thank Clare Tibke for coming along to our Monthly meeting to give a presentation/talk on " Research & Development and Clinical Trials”.
Clare’s Expertise is Clinical Trials and her background is Oncology, and is here to give an overview of the purpose of clinical research, what it is, how it all works and how it is funded nationally. This was done with the use of power point slides, leaflets etc.
Research is the process of asking questions about how things work in order to improve NHS treatment and care. Research can provide information to fill knowledge gaps and change the way NHS care for and treat patients.
The types of research offered to patients in the NHS can be very different, ranging from very simple questionnaire studies to more complex studies called clinical trials.
Clinical Trials are research studies which test new medicines or procedures to see whether they are safe and effective. Clinical Trials are essential for developing better treatments, understanding more about the side effects of medicines and improving healthcare for both adults and children.
Research and innovation are helping to improve the quality and safety of the services N.H.S. OFFER.
The presentation ended with a question time from the S.L.O.P. Group on all areas of treatment, research, and trial availability.
Guest Speaker - Paul Holroyd
The Topic was THE PATIENTS PARTNERSHIP GROUP. 14-AUG-2014.
We welcomed PAUL HOLROYD to our monthly meeting, who has come along to introduce himself and to tell us about the local University Hospitals of Morecambe Bay Patients Partnership Group.
Paul Holyroyd was appointed the new cancer services manager this year 2014 and is part of a larger re-structuring of cancer services across the trust, aimed at ensuring that targets for treating cancer are met into the future. Paul was previously cancer data manager for Lancashire Teaching Hospitals. Paul’s interest in cancer began following his wife’s cancer diagnosis in 2005, he then joined the Morecambe Bay Hospitals Cancer Patient Partnership Group.
He said: “ Working in cancer services is more than just a job, behind all the figures are real people dealing with a very difficult time.”
The Cancer Team at University Hospitals of Morecambe Bay NHS Foundation Trust are as follows:
• Cancer Clinical Lead – Dr David Fyfe
• Cancer Lead Nurse - Pauline Robinson
• Cancer Manager - Paul Holyroyd
• Cancer Information Analyst – Phil Davies
• Cancer Services Improvement Facilitator – Bernadette Carney
• Senior MDT Co-ordinator - Tracey Warriner
• MDT Co-ordinator/Trackers :
Keri Alson, Helen Broadbent, Joyce Brown, Christine Ducie, Claire Hawkins, Cathy Robb, Curtis Roskell.
• Cancer Information Officers :
Janet Campbell, Yvette Cass, Sue Jackson.
• Clerical Support : - Naomi Glendinning.
S.L.O.P. Group thanked Paul for his talk on the Patients Partnership Group, and his offer for us to attend the Bi-Monthly meetings at Kendal, the dates and times will be ‘e’ mailed to us later.
S.L.O.P. Objective is to provide a support service for those on a cancer journey, by providing easy access to specialist information, support and comfort.
Guest Speaker : Leah Dalby
The Topic was Physiotherapy 12/Feb/2015.
The Group would like to welcome LEAH DALBY MCSP, PHYSIOTHERAPIST, to our S.L.O.P. Cancer Support Group, as she has kindly agreed to talk to us about her work as she has spent the majority of the last twenty years working with people who have had cancer in a variety of settings. Twelve years at St John's Hospice establishing a new physio part of breast surgery/reconstruction team and several training courses for learning how to work with scarring and tightness from surgery, injury, and radiotherapy. This technique can have an effect on new scars as well as those established for many decades and although the courses have been aimed at working with the effect of cancer and its treatment she also uses the technique for non cancer surgery and injuries. She also has experience of supporting people with their fitness levels after/during chemo/surgery pacing, fatigue management and living as fully as possible when recovery is not possible
Tel.07934785797 or 'e' mail email@example.com.
Speaker : Lucy Eastlake & Liz. 12-Mar-2015
Speaker : Lucy Eastlake & Liz.
TOPIC : Feedback on an NHS WORKBOOK FOR (FEAR OF RECURRENCE ) of Cancer.
On Thursday 12th March 2015, the S.L.O.P. Cancer Support Group had 2 visitors to their monthly meeting from The Cumbria Partnership NHS Foundation Trust, namely Lucy Eastlake, a Macmillan Assistant Psychologist and Liz.
The purpose of the visit is for the S.L.O.P. Group to review the FOR ( Fear of Recurrence ) of Cancer Draft Workbook and comment on the supplied feedback forms. The forms to be returned to Lucy after the S.L.O.P. MEETING in April.
What NHS Cumbria Partnership FT is looking for at the moment is assistance with finding patient groups to review and provide feedback on a workbook they have created. The workbook is designed for patients who are struggling with worries about the cancer coming back after treatment. Initially it has been designed to be used by patients with a healthcare professional but it may evolve into something patients can use independently as well.
You have been given this book because you have had cancer and you have realised that you are finding it hard to get on with life. You may have realised this when you were talking to your doctor or another professional who told you about this book. If you are worrying about cancer coming back, this can mean you are not able to make the most of being cancer free. This book is made to help you deal with the worry about cancer coming back. If you have had cancer you will probably have some fear of cancer recurrence. This is a normal reaction.
Fear and anxiety are normal reactions. They may be present all the time, or they may come and go. These feelings can be very strong and difficult to cope with – you may find that you can’t concentrate, are easily distracted, sleep badly or become irritable with others.
Fear and anxiety often lessen over time as you get on with activities not related to the cancer. If you are concerned about any unexplained symptoms, particularly that last more than a week, you can always arrange a check up with your G.P.
CUMBRIA PARTNERSHIP NHS FT - PHYSICAL HEALTH PSYCHOLOGY
We support people with long-term conditions to manage the impact of the condition upon their life. This includes considering the interaction between the long term condition and the person's thoughts, feelings and behaviour. We offer interventions based on guidelines published by the National Institute for Health and Care Excellence (NICE), who recommend treatments based on evidence from research.
People referred to the Physical Health and Rehabilitation Psychology Service fall into two broad categories. Firstly, people who are having difficulties managing their long term condition. Secondly, people who have developed a secondary psychological problem due to the events surrounding living with a long term condition.
We provide assessment, suggest strategies and support people to adjust psychologically to living with a long-term condition. In some instances the service may also be open to family members of those living with a long-term condition. We offer support with difficulty coming to terms with diagnosis, especially where this may include:
•end of life issues;
•low mood, anxiety and stress caused by living with and managing the illness;
•uncertainty about future prognosis and treatment
•maintaining control over your life;
•adjusting to life with the condition and worries about how the illness is affecting those closest to you.
CONTACT THE TRUST :
CA11 7QQ (Sat Nav CA11 7BF)
Switchboard: 01228 602000 or 01946 523 653.
Guest Speaker : Professor Bob Mason
Topic : THE OPA ( Oesophageal Patients Association ) 12th May 2016
The SOS Cancer Support Group would like to welcome and thank Professor Bob Mason ( THE OPA CHAIRMAN ) for coming along to the SOS Group meeting on the 12th May 2016, to give a presentation / talk on " THE OESOPHAGEAL PATIENTS ASSOCIATION".
Bob Mason – The OPA Chairman
Professor Bob Mason was the third generation to attend medical school in Manchester. He obtained a BSc (1st) in Anatomy in 1973 and graduated MB ChB with Honours in 1976. After initial appointments in Manchester he moved to the professorial Unit in Edinbugh where he obtained his FRCSEd and an MD in breast cancer research. In 1981 he moved to Guys Hospital London where he completed his higher surgical training and obtained his ChM for research in gastric cancer. He was appointed Senior Lecturer and Consultant Surgeon at Guys Hospital in 1986 and has remained at Guys and St Thomas Hospital ever since.
He was instrumental in building up the Upper GI unit, which has an international reputation for the treatment of oesphagogastric cancer and acts as a national centre for salvage and reconstruction following failed upper GI Surgery. He has been active in research with over 140 publications and supervised 8 higher degrees. He was appointed Hon Professor of GI Surgery in Kings College London in 2010 in respect of his clinical and research leadership.
He has always maintained a major interest in education especially postgraduate surgical training. He has been an examiner for the MRCS and FRCS exams for 20 years and for 3 years was convenor of examinations for the RCS Edinburgh. In recognition of his contribution to education he was appointed Hon Fellow of the College of Surgeons of Hong Kong in 2012 and has delivered prestigious lectures to the Association of Surgeons of India, The Association of Surgeons of New Zealand, The Royal Australasian College of Surgeons and the College of Surgeons of Hong Kong.
Outside work he is a keen golfer and enjoys fell walking and opera.
The OPA and Who we Are
The Oesophageal Patients Association is a national registered charity and was formed in 1985 when a few former oesophageal cancer patients met and found tremendous reassurance in sharing experiences. The members of the Association are all patients who have experienced oesophageal or gastric difficulties. We have prepared medically approved booklets and fact sheets on the problems, which we can talk about at first hand, understanding the fears that can be generated, the pains that can be suffered and the effects on the digestive system that can be experienced.
The OPA and What We Do
Our objectives are to help new patients and their families to cope with any difficulties arising as a result of treatment, giving support and encouraging them to achieve a good quality of life. This is done by providing information leaflets on matters of concern, a telephone support line, arranging patient support meetings around the UK and, where possible, visiting patients in hospital or making contact during their convalescence.
Patients may be referred by other agencies, such as Cancerbackup, doctors or specialist nurses anywhere in the UK and can by helped by telephone on the National Helpline or put in touch with a trained former patient where possible. Talking about the problems with someone who knows what they are like (perhaps rather better than the doctor) can be a great relief and there is time to deal with all the questions that seemed too trivial to mention to the doctor or were forgotten at the time.
The Association is represented on various committees involved with the management of upper GI cancers and research into new treatments. Patient involvement is increasingly recognised as a valuable input to the thinking and documentation on such matters.
Everyone in the SOS GROUP would like to express appreciation for your inspiring presentation, your years of research, your depth of understanding of user interfaces and your ability to present the subject in such an interesting way, and this produced one of the most memorable sessions in our group history.
GUEST SPEAKER - LOUISA BALDERSON ( nhs/macmillan)
TOPIC ON THE 12th JANUARY 2017 was :
" LIVING WITH AND BEYOND CANCER MORECAMBE BAY PROJECT "
The SOS Cancer Support Group would like to welcome and thank Louisa Balderson and Liz from Macmillan/NHS , who came to talk about " Living with and beyond cancer " and about the need for a " Holistic needs assessment ", for which she handed out the Macmillan Concern checklist for discussion. It was agreed that she should return at a later date and tell us how her team for the Morecambe Bay Trust is progressing with their Living with and beyond Cancer Project.
The Living With And Beyond Cancer Programme:
The Macmillan Living with and Beyond Cancer programme is working to ensure that people living with and beyond cancer are leading as healthy and active a life as possible.
More people than ever before are living with and beyond a cancer diagnosis. The impact of cancer does not suddenly stop when the treatment is over.
Macmillan is working in partnership with the NHS to help improve the experience of people living with and beyond cancer in Morecambe Bay Project. believe that all people living with or beyond cancer should have access to the following:
a) A post-treatment assessment care plan and appropriate medical ,practical and emotional services for everyone who finishes treatment or is diagnosed with active, progressive or recurrent cancer. This should also include information regarding employment after cancer.
b) High-quality information and the tools to help people support themselves throughout their cancer journey.
c) Advice and support to help people back to work.
d) Support for people experiencing physical or emotional consequences relating to their cancer or its treatment.
e) Timely access to psychological therapies to address any mental health issues.
f) Access to specialist medical care for complications that occur after cancer.
h) Involving people living with or beyond cancer in the development of services.
i) Health Care, social care and voluntary organisations working more closely together to help support people living with or beyond cancer.
Holistic Needs Assessment (HNA):
Holistic Needs Assessment is a process of gathering and discussing information with the patient in order to develop an understanding of what the person living with and beyond cancer knows, understands and needs.
The Holistic Needs Assessment is focused on the whole person. Their entire well-being is discussed – physical, emotional, spiritual, mental, social, and environmental. The process culminates when the assessment results are used to inform a care plan. The care plan is based on the diagnosis and holistic assessment of the patient. The essential components will include needs and concerns identified by the patient related to the diagnosis. It prioritises the patient’s issues and includes a statement on the specific goals, actions and approaches to address them – and recognises issues which may not be readily capable of resolution. The assessment and care plan process should ensure that care is consistent with the patient’s needs and progress toward supported self management.
The care plan will be developed in partnership with the patient and become a part of the record that can be reviewed to ensure that actions have been taken and revisited if health and social needs change.
Guest Speaker - Dr. D Cheung MB BS MRCGP DCH - 1996 - London.
Topic on the 9th February 2017 was :-
" The Gp's perspective on the difficulties they face today ".
We have a visitor/ Speaker this month, 9th February 2017, Dr. David Cheung from the Ash Tree Surgery Carnforth, to speak about , the GP's perspective on the difficulties they face today and the role of a GP during pre/post Cancer Treatment.
Ash Trees Surgery is a well established NHS dispensing General Practice in the North Lancashire market town of Carnforth. The surgery has over 15,000 registered patients. They have 11 GP partners and 4 associate GPs. They employ a Practice Manager, an Assistant Practice Manager, 1 Advanced Nurse Practitioner, 1 Triage Nurse, 5 Practice Nurses, 6 Primary Health Care Support Workers, a Clinical Pharmacist and a team of administrative staff.
With the use of a projector, laptop etc, included in Dr D Cheung's talk on the GP's perspective on the difficulties they face today, he also included some of the following topics, followed by a short question and answer session:
a) Roll of the GP during PRE /POST Cancer Surgery .
b) Post Treatment Care Plan- containing high quality information to help the patient on their cancer journey.
c) More NHS dietician involvement and visits to support groups
d) Identify and address specific problems : Dumping Syndrome, Diarrhoea Excessive Sweating, Tiredness, Reflux , sleeping position and diet / nutrition problems.
e) GP's to carry out effective Cancer Care Reviews during treatment and follow up after care.
f) Fast Track referral for hospital appointment, always take a family member or friend with you.
g) The impact of moving from professional care to back home care is very difficult.
The SOS Cancer Support Group would like to thank Dr. D Cheung for his informative talk and look forward to keeping in touch with him for future involvement.
Guest Speaker : Nicky Morris.
Topic on the 9th March 2017 was : -
" Tai Chi - Talk and Demonstration"
The idea of the demonstration was to introduce Tai Chi to the SOS Group members ,with a view to applying to Macmillan for a grant to attend a course of lessons. but if you have a medical condition, any health concerns or haven’t exercised for a long time, please speak to your GP before you start any tai chi sessions.
A demonstration of Tai chi, also called tai chi chuan, combines deep breathing and relaxation with slow and gentle movements. Originally developed as a martial art in 13th-century China, tai chi is today practised around the world as a health-promoting exercise.
Tai chi is characterised by its slow, graceful, continuous movements that are gentle on the joints and muscles. Done correctly, you'll find that the tai chi poses flow smoothly from one into another.
On a Physical level, the slow, relaxed condensing and expanding postures provide a whole body exercise. Tai Chi provides the wholesome movements necessary to help maintain the health of joints and elasticity of soft tissues. The centred, balanced postures combined with gentle twisting and stretching allows the body to relax and begins to free it from the punitive restrictions imposed by the stresses of daily life. Furthermore, the internal organs are surrounded by muscles; the gentle rhythmic movements of Tai Chi co-ordinated with relaxed breathing provides an "internal massage", improving blood and Qi circulation.
On a Psychological level, the meditative nature of Tai Chi helps develop a more centred mind free from distractions, enabling us to address everyday issues with more clarity and reducing stress by providing a brief "mental space".
On an Energy level, relaxation of mind and body combined with positive mental intention, results in smooth flow and more efficient use of Qi, the body's natural energy.
The SOS Cancer Support Group would like to thank Nicky Morris for her informative talk and demonstration including the music and candles and look forward to keeping in touch with her for possible future involvement.
GUEST SPEAKER - LOUISA BALDERSON ( Nhs/Macmillan)
TOPIC ON THE 13th APRIL 2017 was :
" LIVING WITH AND BEYOND CANCER MORECAMBE BAY PROJECT "
This Month we had a Visitor / Speaker attending --- Louisa Balderson. NHS/Macmillan.
Louisa first came to our group meeting in January 2017 and spoke to us about -
"Macmillan living with and beyond cancer in Morecambe Bay (LWBCMB) "
The idea of this second visit was to give the group an update on the progress of her project and also to stimulate questions and answer on her project objectives, which is to help patients and carers, cope, living with cancer.
Living with and beyond Cancer
The impact of cancer often doesn’t end when treatment does. Everyone should be supported to live as well as possible for as long as possible after a cancer diagnosis.
The Trust and Macmillan Cancer Support believes that central to the success of this transformational programme of cancer services is to involve service users and carers by learning from their experiences. The programme aims to establish a consistent yet flexible approach to user / carer engagement.
The aim is to influence the overall direction and quality of services by giving a meaningful voice – at all levels- to service users and carers in order that they can support the Trust in making improvements to cancer care delivery.
The impact of cancer often doesn’t end when treatment does. The consequences of cancer and its treatment include chronic fatigue, sexual difficulties, mental health problems, and pain. Six months after the end of their cancer treatment around 50% of people will have one or more unmet health need. Many of these problems can persist for years and even decades. Having cancer can also impact on all other aspects of people lives; including their social life and family relationships.
Patients and carers wishing to get involved will be offered a ‘menu of opportunity’ in terms of how much input they want to give. This may involve providing their patient story, which with permission will be shared with Macmillan Cancer Support and Hospitals NHS Trust or they may be happy to complete a survey or questionnaire which has been developed as part of the project.
The next " Open Space" conversation is on the 24th April 2017.16:30 - 20:30 at Castle Green Hotel, Castle Green Lane, Kendal . LA96RG.
" Come along and share your experiences, ideas and have your say."
Contact : 01524519369 Louisa.Balderson@lancashirenorthccg.nhs.uk
We would like to thank Louisa for her talk and slide show, as Louisa spoke from 3-4pm, when unfortunately we had to call a halt to her presentation as the group meeting had to finish at 4pm. But we all enjoyed the interaction and hoped that Louisa and the group all went away with a better understanding of the Project that Macmillan and NHS are introducing, which should help future Patients, Carers , GP.s and all NHS STAFF associated with Cancer Treatment.
Guest Speaker : Lynn Quigley
Topic : Pancreatic Cancer 9th Nov 2017
The SOS Cancer Support Group would like to welcome and thank Lynn Quigley ( Community Co-Ordinator North West ) for coming along to the SOS Group meeting on the 09 Nov 2017, to give a presentation / talk on " Pancreatic Cancer UK ".
We will get PURPLE this November for Pancreatic Cancer Awareness Month.
We are on Purple Alert .Get Purple and save Lives.
LYNN - (middle of photo) wanted to make us aware of all the support and information which is available for those who are affected by pancreatic cancer. Here is a short summary of some of the areas she wanted to make us aware of :
Support Line for those affected by pancreatic cancer - they have a dedicated FREE support line for patients, family, friends and carers to call 0808 801 0707. The support line is available Monday – Friday 10am – 4pm and you can speak directly with a pancreatic cancer specialist nurse. For more information please visit FREE Support Line
Literature - They have such a wide range of literature covering topics such as diet, pain management, caring for someone with pancreatic cancer and much more. You can order suitable quantities from their website: Order Literature
Online Forum – is a supportive place where everyone affected by pancreatic cancer can be there for each other, any time of day or night. For more information please visit Online Discussion Forum
Living With Days - Designed to be a relaxing, supportive and informative day for people living with pancreatic cancer. For more information please visit Living With Days
Pancreatic Cancer Awareness Month, November 2017 – If you are able to support us in any capacity, then they would love to hear from you. It is such a well-coordinated campaign and to see details for 2016 - for more information please visit PCAM
Involvement – there are so many ways in which patients, carers, health professionals and others can be involved. As discussed here are just a few:
o Review our publications to make sure the information is relevant and accessible
o Join our Patient and Carer Advisory Board
o Share your story and raise awareness of pancreatic cancer (with the media, or as a
speaker at events)
o Share your experience on the ‘Real Life Stories’ section of our website
o Help us to campaign
o Set up or join a local support group
o Join our Research Involvement Network to influence what research projects are
funded by the charity
o Complete a survey to help inform our campaigns.
If you need any support in the meantime, please do not hesitate to give me call Lynn Quigley Mob.Tel. 07458 017 996. and www.pancreaticcancer.org.uk
Community Coordinator (North West)
Pancreatic Cancer UK
Sixth floor, Westminster Tower
3 Albert Embankment
London, SE1 7SP
Mobile: 07458 017996
Main number: 020 3535 7090
Pancreatic Cancer UK Support Line: Freephone 0808 801 0707
Guest Speaker : W.R. MILLER
TOPIC : A Talk on his Cancer Studies and Experiences.
The SOS Cancer Support Group would like to welcome and thank William R Miller for coming along to the SOS Group meeting on the 15th March 2018, to give a presentation / talk on his Cancer Studies and Experiences
William R. Miller
Is an Emeritus Professor at the University of Edinburgh, in the United Kingdom. He completed his BSc and PhD degrees at the University of Leeds before receiving a DSc from the University of Edinburgh. William R. Miller is past Chairman of the Scientific Advisory Board of the Breast Cancer Campaign, past Chairman of the British Breast Group, and was Secretary to the British Association for Cancer Research. He is a member of various editorial boards, including the British Journal of Cancer, New Directions in Endocrine Treatment of Breast Cancer, and The Breast. William R. Miller has published more than 250 articles and made more than 100 presentations at national and international societies and symposia. His research interests include cell biology and tumour endocrinology of breast cancer. Current activity centres on organising and running scientific meetings and editing proceedings – most notably ‘Controversies in Breast Cancer’, an annual symposium which is now in its ninth year (proceedings are published in Breast Cancer Research).
The TALK was not only about Breast Cancer but also referenced Stomach and Oesophageal cancer treatment with the use of HER-2 AND HERCEPTIN IN STOMACH/OESOPHAGEAL CANCER patients.
It seems everyone in our group would like me to express appreciation for your inspiring presentation at the SOS Cancer Support Group Monthly Meeting on the 15th Mar 2018. Your years of research, your depth of understanding of user interfaces, and your ability to present the subject in such an interesting way produced one of the most memorable sessions in our group's history. We personally appreciated your approach to anticipating users' intents, and as the subject intrigued us, you will always be welcome at our meetings. Thanks to you and your wife for taking time to visit our support group.
Guest Speaker : Neil Townsend ( Chief Executive Officer CancerCare)
Topic : The Vision and Values of CancerCare.
The SOS Cancer Support Group would like to welcome and thank Neil Townsend ( Chief Executive Officer ) for coming along to the SOS Group meeting on the 20th Sept 2018, to give a presentation / talk on " The Vision and Values of CancerCare " which is a unique independent charity dedicated to helping local families affected by cancer and other life limiting conditions living in North Lancashire and South Cumbria.
Neil Townsend, took up post at CancerCare in February 2015 after moving with his partner to Pilling, near Lancaster.
Neil, who has a business, community development and human resource background, is leading CancerCare through a period of change and challenge ensuring that the charity can adapt to the increased demand for its services across North Lancashire and South Cumbria.
CancerCare is a unique independent charity dedicated to helping families affected by cancer and other potentially life limiting conditions, and delivered by qualified and experienced staff. CancerCare’s wide range of free professional Therapy Services , are designed to help individuals and their families come to terms with and manage the challenges of a serious health condition and include: Counselling, Hypnotherapy, Alexander Technique, Aromatherapy Massage, Group Activities, Support Groups, Children and Young People’s Service and has now a Free Will writing service.
With 35 years of experience, CancerCare has worked with and helped more than 30,000 local people affected by cancer and other life limiting conditions.
CancerCare began life in 1983 as a small volunteer led telephone helpline service based in an office within the Royal Lancaster Infirmary offering support to local cancer patients and their families in an informal, relaxed manner.
CancerCare now has three dedicated centres based in Barrow (Trinity Church Centre on Warwick Road), Kendal (The Lakes Centre, Blackhall Road) and in Lancaster (Slynedales, Slyne Road Tel: 01524 381820) and also provides outreach services in local hospitals.
CancerCare is a local charity, responsive to local needs and provides a friendly and welcoming safe space for all.
We have a visitor/ Speaker this month, 21st FEB 2019, Sarah Collins who is a dietician works as a nutritional therapist for CancerCare at all 3 centres, Lancaster, Kendal and Barrow.
Sarah meets with clients to make diet and exercise recommendations for health, tailoring these recommendations to the specifics of a patient's situation. This is a form of complementary and alternative medicine, focusing on the use of diet to improve health.
When a client meets with a nutritional therapist, the two will discuss why the client is seeking help and the therapist will ask a series of questions to collect information about medical history, documented issues, and the client's current dietary habits. The therapist can make recommendations for adjustments, usually revolving around integrating more whole foods like fresh fruit, whole grains, and leafy green vegetables. The client may also need to eat a more varied diet to meet nutritional requirements.
Sarah discussed with the group the effects that cancer and surgery have on the body and recommended the use of B12 and D3 Vitamin sprays which she felt would benefit the group.
Vitamin B12 is specifically known for its role in producing healthy amounts of red blood cells which are necessary for the proper delivery of the required oxygen to the body's cells and tissues. Research has also found that B vitamins are linked to cognitive health and memory, and in particular maintaining the body’s energy levels.
BetterYou™ DLux1000 is a convenient daily oral vitamin D3 spray. Specially formulated to deliver vitamin D directly into the bloodstream bypassing the digestive system.Vitamin D3 helps in the maintenance of bones and teeth, supports a normal, healthy immune system and contributes to a normal muscle.
We would like to thank Sarah for her presentation and question time, as Sarah spoke from 3-4pm, when unfortunately we had to call a halt to her presentation as the group meeting had to finish at 4pm. But we all enjoyed the interaction and hoped that Sarah and the group all went away with a better understanding of a dieticians view that all people are different and what suits one person may not suit others, and if any person in the group would like further information and advice they should contact CancerCare and ask for a referral to meet with "Sarah Collins".
Guest Speaker : Sarah Collins
Dietician who works as Nutritional Therapist.
Guest Speaker - Anne Oliver
Community Engagement Manager with AGE UK Lancs.
The SOS Cancer Support Group would like to welcome and thank Anne Oliver “Community Engagement Manager Age UK Lancashire,” for coming along to the SOS Group meeting on the 15th AUG 2019, to give a presentation/talk on " AGE UK ".
Age UK Lancashire provides an information and advice service for older people aged 65+ and their carers.
Information and Advice Service.
The service is free of charge, confidential, independent and impartial. We are able to help you with a range of issues. This may be about claiming benefits, housing, health and care issues or local services. You may be facing a crisis, or just considering your options. We value diversity, promote equality and challenge discrimination in all that we do. We respond to an individual’s needs without regard to their gender, sexual orientation, disability, race or religion.
We aim to provide the information and advice that you need for the issues that you face. We won’t judge you, persuade you or tell you what you should do – we will listen, explain all the available options to you and support you in the course of action you decide to take. If we aren’t able to help you, we will try to help you find someone who can.
Age UK Lancashire believes that it is important to enable older people and their carers to have support to remain independent and to live interesting and fulfilled lives.
Download information leaflets :
The SOS Cancer Support Group would like to thank Anne Oliver for her informative talk and look forward to keeping in touch with her for future involvement.
Community Engagement Manager
Age UK Lancashire
3-2-5 Storey House
Mob: 07807 338783
GUEST SPEAKER - ANDREA PARTRIDGE
The Topic was Lancashire & South Cumbria Cancer Alliance - 17th Oct 2019
The Group Welcomed and Thanked Andrea Partridge who attended our meeting and who now works for CANCER ALLIANCE and is here to tell us about her role in helping NHS.
Here is the link for the People’s Voice that she will be talking about, ( copy and paste)
If you would like to visit the link and fill in the short form she will get back to you.
Cancer Alliance has been established to provide leadership by bringing together those who make decisions about services and those who deliver those services to work together to transform cancer services and improve outcomes for patients.
People's Voice :
Patients and the public - those who use and care about health and wellbeing services - have invaluable knowledge and experience which can help shape and improve local cancer services. That is why patient and public involvement through the People's Voice is fundamental to decision-making across the region.
Through the People's Voice patients, carers, members of the public, support groups and voluntary organisations sign up to receive information about our work and to ensure that they are aware of Service Improvement opportunities that are available to be involved in. They can become members of our specialist clinical networks, attend meetings to share views and personal experiences and be a part of building future local cancer services within the NHS.
By also operating as an extensive virtual network, the People's Voice makes it easy for everyone to be heard and contribute, regardless of their work and personal commitments or circumstances. If anyone is unable to attend meetings and events in person, people can still engage in online surveys, comment on documents, publications or key issues and share their personal stories.
Help grow the people's voice :
Work with us to grow the People's Voice.
The more information we have from patients and the public, the better placed we are to make informed decisions and improve services across Lancashire and South Cumbria.
The SOS Cancer Support Group would like to thank Andrea for the informative talk and look forward to keeping in touch with her for future involvement, and please fill in the form, if you would like to find out more or get involved , this is on the above website link.
Guest Speaker : Katrina Hampson
The Topic was the Presentation of a cheque for £150 for
The Furness Community Award Scheme.
The Furness Building Society Community Awards Scheme
We recognize the hard work that local people do in our communities and the Furness Community Awards Scheme gives local people the chance to apply for £150 to give them a helping hand with the fantastic work they already do to help others in their local community.
On the 21st November 2019, Katrina Hampson the Poulton Branch Manager of the Furness Building Society attended our SOS CANCER SUPPORT GROUP MEETING to present a cheque for £150, for the activity we proposed which will be used for paying the car parking charges at Preston Hospital, which is now a car number plate recognition car park, and the cost would be automatically debited from the grant money in our SOS Bank account. This helps both patients and friends who are attending the hospital for treatment as it reduces the stress of worrying about the duration of parking and cost incurred of the numerous appointments etc.
The SOS Group Members would like to thank the Furness Building Society for the Grant Award Money which will be used as required by our members when they require to visit the Preston Hospital.
Guest Speaker – Maria Chambers
Topic : Cancer Care Slynedales, Future Strategy. 16/Jan/ 2020.
The Group would like to welcome and thank Maria Chambers Chief Executive Officer, CancerCare, Slynedales, for coming along to meet our group to inform us how CancerCare will proceed in the next 5 year period.
Maria replaced Neil Townsend who retired October 2019.
Since Joining CancerCare in October 2019 the last few months have been a whirlwind of meetings as I endeavoured to meet staff, therapists, volunteers and clients across all areas of the charity.
Wherever I go and whoever I meet the resounding message is that CancerCare is not only a much loved local institution, but a vital service in the communities we serve across North Lancashire and South Lakeland.
Operationally , the Cancer Care Strategy , which outlines the direction we will take over the next five years, is due for a refresh and we have been busy putting together a project team, made up of staff and stakeholders from across the organization who will have vital input into our future plans.
As part of this strategy ,we are consulting staff, volunteers, service users, past and present and a wider range of stakeholders and interest groups to find out what people like about us and what they don’t and how we could be even better.
As part of this consultation process we are inviting people to complete a short survey, the results of which will be fed directly into our future plans and I shall give the Questionnaire link to Phil Carey to pass to your group members.
The SOS Cancer Support Group would like to thank Maria Chambers for her informative talk and look forward to keeping in touch with her for future involvement as she said “ her door is always open”, and we await the questionnaire form link.